Family acceptance in the process of coping with genetic disease: Review of literature
KEYWORD: genetic syndrome; coping; face; family; acceptance.
ABSTRACT
The discovery of a genetic disease that raises intellectual deficits affects family stability through the breakdown of expectations, insecurity regarding the risks of lethality and the parents' guilt at the diagnosis. This article aims to assess family acceptance and coping strategies used in this process. For data collection, 24 articles from the “Google Scholar” and SciELO databases were used. From these, only five met the selection criteria for addressing the parental relationship with genetic diseases and family coping measures. The acceptance process is often hampered by misinformation about the disease, the lack of support from the support network and the way the news is communicated by health professionals. The parents, therefore, blame themselves for what happened, especially the mother. Coping strategies in this context are sought, such as: religious, family, friends and public support. Treating the family as the central character of the problem, and not the pathology, is a fundamental step towards starting to face this condition. The importance of this article is based on the ability to provide information to both families and health professionals, aiming at the best way to carry out the coping process.
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